Children and young people’s continuing care

A continuing care package will be required when a child or young person has needs arising from disability, accident or illness that cannot be met by existing universal or specialist services alone.  Some children and young people (up to their 18th birthday), may have very complex health needs. These may be the result of congenital conditions, long-term or life-limiting or life-threatening conditions, disability, or the after-effects of serious illness or injury.

These needs may be so complex, that they cannot be met by the services which are routinely available from GP practices, hospitals or in the community commissioned by clinical commissioning groups (CCGs) or NHS England. A package of additional health support may be needed.

This additional package of care has come to be known as continuing care. Continuing care is not needed by children or young people whose needs can be met appropriately through existing universal or specialist services through a case management approach.

The process of obtaining an assessment for Children’s Continuing Care in Brighton and Hove requires a referral from a healthcare professional or social worker to Sussex Community Trust, where by a pre assessment checklist will be completed and sent to the CCG. In B& H we like to offer an informal consultation for professionals considering making referrals and seeking advice as to the appropriateness of said referral.

A multi agency panel process is in place chaired by the CCG to consider checklists and completed assessments for eligibility. Eligibility is set out in the NHS National Framework for Children’s Continuing Care 2016.

Decision making tools

Children’s Continuing Care information